Your Role

With the power of your voice, Beyond Celiac is shaping a new model for engaging patients in research. Informed and engaged patients are the gears that will ensure celiac disease research results in the changes we deserve.

Across the healthcare field, patients’ stories are shaping what researchers study and how they study it. Go Beyond Celiac connects patients and caregivers with researchers to make sure your needs are heard.

What happens to patients in the real world must be understood. The complete patient experience, not only what is shared in a brief clinic visit, should be part of the research process from the start. Only you can provide a view of what it’s really like to live with celiac disease and what is needed to make your life easier and better.

By participating, you have an opportunity to:

  • Improve your own disease management
  • Share your experiences and learn from the experiences of others
  • Directly contribute to research
  • Keep up-to-date about important developments in diagnosis, disease management, drug development and more

 

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