How do I join Go Beyond Celiac?
Joining is easy! Click the button below to register. Once you register and confirm your email address, you can start creating your online profile. You’ll then be redirected to your own homepage where you can start contributing to research. Enroll here.
How do I confirm my email address?
When you create your Go Beyond Celiac account, an email will automatically be sent to the email address you provide. Please check your spam or promotions folder. If you can’t find the email, reach out to us at [email protected]. If you do not confirm your email address, you will not be able to answer any survey questions and eventually your account will be removed.
How do I get the app?
You can download the MyGreenSpace app on your Apple or Android devices.
Our app provides a mobile-friendly way to share your experience of living with and managing celiac disease. It also offers helpful insights about events, educational opportunities, and more.
Why should I participate?
Participation in Go Beyond Celiac gives you access to information about yourself, your disease, and how your experience compares to others also living with celiac disease. Your participation provides researchers with critical anonymous information that can help them learn more about how the disease develops, ways to improve diagnosis and information that can lead to new treatment options and even a cure.
Who should participate?
Adults (18 and older) who are diagnosed with celiac disease or gluten sensitivity should participate. Due to differing international privacy regulations, Go Beyond Celiac is currently only available within the United States.
How does it work?
Once you join Go Beyond Celiac, you’ll see a list of surveys to fill out. These surveys ask about your life and experiences with celiac disease. The surveys are collecting data that is important to researchers studying celiac disease.
You can also view Insights, where you can compare your answers to other people in Go Beyond Celiac and learn more about celiac disease research and events.
All of the health information that you submit to Go Beyond Celiac will have any identifying characteristics removed, so your information will remain private. This anonymous information will be shared with qualified researchers conducting celiac disease research.
What does participation involve?
All you have to do to advance celiac disease research is talk about yourself!
You’ll fill out research surveys and answer questions about your own experiences before, during and after diagnosis. Some questions will be multiple-choice, while others will be free-form text. Participation in Go Beyond Celiac is voluntary. Surveys take 10-20 minutes to complete, and you can start and stop at any time. Your information is saved automatically as you complete survey questions.
Why do we need more research on celiac disease?
Researchers still don’t fully understand celiac disease. This lack of information prevents doctors and scientists from making the advances that will help you live better and longer. You and others like you can provide these details by sharing information about your medical and lifestyle experiences with celiac disease.
Is my information private and secure?
Yes. Beyond Celiac takes your privacy very seriously and we have technology and processes in place to keep your information private and secure. Before any information is shared with researchers, any information that identifies you is removed (like your name and email address, for example). We take every precaution that is standard for protecting health information.
What is GreenSpace?
GreenSpace is the new platform (with Android and iOS mobile apps and a website) where the Go Beyond Celiac registry is hosted as of 2024. Though it is a different application, the functionality within the platform is very similar to what you are used to. Moving to GreenSpace allows us to innovate more quickly and provide essential updates in a timely manner.
How do I access the Go Beyond Celiac registry once it has been migrated to GreenSpace?
The process to start accessing Go Beyond Celiac on GreenSpace is simple:
- Access Go Beyond Celiac via the web at https://go.beyondceliac.org/ or
- Download the MyGreenSpace iOS app or Android app
Can I log into the GreenSpace app and website using my existing email address and password?
Yes, the email and password you currently use for Go Beyond Celiac will continue to work and will be the way you access GreenSpace.
How will I know that I am working with Go Beyond Celiac when I am in GreenSpace?
After you log into GreenSpace, you will see the Go Beyond Celiac logo and name at the top of your app or the web page.
Will there be a lot to learn in order to use the GreenSpace app or website?
No, once you are in the app or website, both the capabilities and content offered will be very familiar to existing users of Go Beyond Celiac.
Who will support me if I need help using the GreenSpace app?
You will continue to receive support from designated Go Beyond Celiac personnel.
How can I contact the Go Beyond Celiac team?
If you have questions or comments about Go Beyond Celiac, we’d love to hear from you. General and technical questions: [email protected].
Media inquiries: Communications Team, [email protected].
If you’re a researcher interested in accessing patient data from Go Beyond Celiac or working with us on a survey or clinical trial matching, please contact our platform coordinator at [email protected].
Download the MyGreenSpace App
